Friday, June 26, 2009

A brief update

Sorry I haven’t posted to the blog in a while, Chuck has been having an increasingly hard time tolerating AZD, the trial drug. He hasn’t been able to eat more than a cup or two of food every day and the only food that his body can tolerate are plain, white carbs (white bread, white rice, etc). And because he has been getting so sick every time he eats he has become dehydrated – so when we were at the hospital yesterday they gave him 2 liters of IV fluids, which made him feel a lot better. The other side effects he has been experiencing are extreme fatigue and his gums have started bleeding – both common side effects from the trial drug and radiation. After meeting with his doctor’s and the trial coordinator yesterday afternoon it was decided that Chuck will take a short 1 week break from the AZD, to see if we can get the side effects better under control. They will then see how he is feeling next Thursday and will decide whether or not to put him back on the AZD, or if they should lower his dose, or put him back on his original high dose. At this point we are weighing quality of life – being able to eat and be awake and feeling ok, with the benefits of being on the AZD – hopefully slowing down the growth of the tumor. It is incredible frustrating and heart wrenching, and it kills me to see Chuck suffering. He has been a trooper through it all, but I know he is getting tired of all of the stomach problems, the sleepiness, and not being able to “do anything”, like go for a walk or go out to eat or visit with friends. Hopefully taking a break from the AZD for a little while will bring his body some relief, and he will be able to get back into living his life.

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